R.J.'s Diagnosis

At the age of two R.J. was diagnosed with a condition called Aortic Stenosis. He has a growth of tissue in his heart that blocks the flow of blood into the Aorta. Over the last ten years the tissue has enlarged and now must be removed. The function of his Aortic valve has also been affected and may need to be repaired. This requires open heart surgery.

R.J. will be having surgery sometime soon at Primary Children's Hospital. We are very grateful to be living so near a wonderful hospital and feel confident that all will go well with his surgery. We have started this blog to keep friends and family updated and in the "know".

Saturday, June 25, 2011

Today may be our last day in the hospital! R.J. has made amazing progress in the last two days. A few people have asked for specifics on his surgery so here's some specifics. R.J. had a growth of tissue removed from the aortic chamber. His Aortic valve was not closing properly because of the growth and they were concerned that the tissue might be attached to one of the valve leaflets. The surgical plan was to remove the growth and repair the valve. Fortunately the valve did not need repaired. There is still a slight regurgitation of the valve, but it's so slight the surgeon chose not to mess with it and take the risk of additional surgery in the future. R.J.'s surgery was scheduled for 4 and a half hours, it only took 3 and a half from the time he left us to the time we coud see him in the ICU. We are extremely grateful for the family that came and helped distract us during that time, it was the most difficult. I will post again when we actually get home and let everyone know we are there!

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